There is a small group on Facebook with some very good information and over 500 people to date posting their stories. It makes me realize how very lucky I am...some of these people have real horror stories and no answers in sight. If you are looking for more info, I recommend this page.
Facebook group for CSF leakers
About Me
- Tracy
- North Augusta, SC, United States
- I am an otherwise very healthy and active woman who was shocked with a sudden medical condition in 2010 and decided to write about my experiences in hopes that it will help at least one person possibly be diagnosed and treated without having to go through the medical maze I went through! If you are an ADULT with chronic ear infections and can't get any answers, ask your ENT to rule out a CSF leak!!!
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