About Me

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North Augusta, SC, United States
I am an otherwise very healthy and active woman who was shocked with a sudden medical condition in 2010 and decided to write about my experiences in hopes that it will help at least one person possibly be diagnosed and treated without having to go through the medical maze I went through! If you are an ADULT with chronic ear infections and can't get any answers, ask your ENT to rule out a CSF leak!!!

Wednesday, February 16, 2011

Brain Update 12-7-10

Mike and I went to Emory Neurosurgery today and saw Dr. Oyesiku.  He's the head of the department.  Kind of frustrating.

He wanted to send me to ANOTHER neurotologist but I refused; I've seen two, one of which was trained at Emory and was a Professor there for years.  I asked him to talk to one of the Neurotologists I've already been to, and he agreed.  He said he would call Dr. Cerenko, my doc, and also the guy at Emory that he knows, tomorrow.

He is also going to go over my CT and MRI with the head neuro-radiologist at Emory.  He may suggest one more type of MRI, called a cisternography:  The radiographic study of the basal cisterns of the brain after the introduction of an opaque contrast medium.  He thinks that will exactly pinpoint the source of the leak so there is no question. Although he clearly pointed to a 11 mm defect in a bone in my ear canal that is the likely culprit.  He's very conservative and wants to be 100% sure before recommending brain surgery. Although he did confirm everything I already know, he would like to pinpoint the leak.

Basically, he said mine is an "interesting case."  I think that's medical lingo for "we know what's wrong but not so sure how to fix it."  At least he is going to talk about my case with some other doctors and maybe they will all be able to agree on the best approach.

Still scheduled for surgery Dec 30th unless Dr. Oyesiku comes up with a better plan.

In the meantime, I have to get a myringotomy to take sample fluid from the middle ear to examine in the lab for the presence of CSF.  This small tube is inserted into a hole they make in the ear drum (mostly done on children.)

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