About Me

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North Augusta, SC, United States
I am an otherwise very healthy and active woman who was shocked with a sudden medical condition in 2010 and decided to write about my experiences in hopes that it will help at least one person possibly be diagnosed and treated without having to go through the medical maze I went through! If you are an ADULT with chronic ear infections and can't get any answers, ask your ENT to rule out a CSF leak!!!

Monday, February 13, 2012

Sarah's Cause-Please help if you can!

Sarah's CSF Leak Fund

We are starting this fund to firstly, help get Sarah to Duke for treatment. But the long term goal is to create a foundation or fund to help other Cerebral Spinal Fluid (CSF) leakers and sufferers get treatment. There are many people suffering with this condition and we hope to shed light on it and possibly provide access to treatment for ALL sufferers in the future! The urgent goal is to get Sarah here as she has come to a major dead end in the UK and is hanging on by a thread at this point. We hope you will help us help Sarah!

Sarah Ambrose has been suffering from this rare and debilitating condition for almost five years. She is leaking Cerebral Spinal Fluid (CSF), a dangerous and potentially deadly condition. She lives in the UK but has been told there are no facilities to treat her and that she must learn to live with the pain. Unfortunately, that is not an option for Sarah as the pain is too great. She has attempted suicide twice. We are trying to raise money to get her to Duke Medical Center in NC where she can see and be treated by Dr. Linda Gray, a world renowned neuroradiologist specializing in CSF leaks of the spine. This is a last resort for Sarah. If she does not get this treatment, and soon, she may not have the will to continue. Her life, as she knew it, has been taken away, and she does not want to live in this constant state of pain and misery.